From Darkness to Light - Dispelling the Myths of Serious Mental Illness


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From Darkness to Light


How Can Mental Health Care In Arizona Be Improved?


By Dr. Max E. Dine

 Keynote Speech at the 2007 Mental Health Fair

 Glendale Public (Main) Library

 May 19, 2007

 
When it comes to mental illness, Arizona has some disturbing statistics.

 
1) Only 5 percent of health insurance companies offer equal benefits for mental and other forms of medical illness. 
 
2) 16 percent of jail & prison inmates suffer from mental illness.
 
3) Arizona has the third leading rate of teen suicide in the Nation.
 
4) Only 10 percent of persons with serious mental illness are employed.
 
5) Only 1 in 4 people with depression receive treatment.
 
 But, I believe, there are ways to improve Arizona's mental health care.
 
                    These are my 9 Strategies (+ 4 others): 

First, mandate mental health insurance parity.
 
    Arizona should prohibit health insurance companies from discriminating against individuals with mental illness.  But legislation equalizing benefits for mental and medical illness has been defeated in the Arizona Legislature almost every year from 1994 including 2007 - despite the passage of  Insurance Parity Laws in 39 other states.
 
 If mental health insurance parity were law in AZ, more people would receive mental health care and earlier treatment when there is a higher rate of therapy success. 
 
 In 2001, State employees received insurance parity by administrative rule change instead of another attempt to pass a parity bill.  Part of the strategy of covering the state employees was to evaluate the cost of parity in AZ as many legislators would not accept the minimal increases of 1-2% of insurance premiums from other states or even data from the Federal Government.   After waiting for 2 years, however, the health insurance company refused to give the Parity Coalition the cost data citing confidentiality!!!!
 
    There is hope that the 2007 Federal Insurance Parity Bill (called the Wellstone Bill after Senator Paul Wellstone from MN, who was killed in a 2002 plane crash, will pass the U.S. Congress and be signed into law by President Bush.  Senator Wellstone's brother has schizophrenia.  

Second, improve jail and prison programs.
 
  Despite the fact that care in the community mental health system costs a fraction of that of incarceration,  jails and prisons have become the largest providers of mental health care in Arizona.  In fact, more mentally ill people are housed in jails and prisons than at the Arizona State Hospital.  Criminalization of mentally ill individuals in Arizona is rampant.
 
Police officers and courts should focus on violent crimes and dangerous felons and divert non-violent mentally ill offenders into the behavioral health system where they can receive better treatment.  Phoenix & Tucson have implemented jail diversion programs for persons with mental illness charged with non-violent crimes. Other cities and counties in Arizona should develop Jail Diversion programs.  
 
Also,  a system of mental health courts in each county in Arizona should be instituted.  Mental Health Courts decrease the number of mentally ill individuals who are incarcerated.
 
Furthermore, mandate that lawyers and judges have to take mental health continuing education courses to renew their license.  Because of the efforts of mental health consumer advocate and attorney, Angela Vickers from Jacksonville, FL, Florida has implemented this law. Why can't Arizona?  
 
 Third, educate youths about mental illness.
 
Offer age-appropriate mental health information in schools (grades 2 thru 12) to increase awareness of possible warning signs of mental illness and suicide. Arizona has the 3rd highest rate of teen suicide in the nation. Each year nearly 25, 000 teens in Arizona attempt suicide  This mental health education would also reduce discrimination & stigma against persons who struggle with mental illness. 

Fourth, integrate mental health with physical health.
 
Encourage primary-care physicians (PCPs) and psychiatrists to work together, so people can receive more comprehensive health care. Studies have shown that, at least, 40% of the PCP's patients suffer from a mental illness.  Mandate that primary care physicians be required to take mental health continuing medical education to renew their medical license  This will help persons with mental illness obtain earlier diagnosis and better treatments. 

 Fifth, lower the 90 percent rate of unemployment for persons with serious mental illness.
 
 Part of the very high unemployment rate is because working at a minimum wage job and having to pay for their psychiatric care that is often far more expensive than staying unemployed and keeping their federal benefits. If more people with mental illness had jobs, they would earn more money, have better self-esteem, require fewer government entitlements and become taxpaying citizens.
 
 Sixth, increase police awareness and sensitivity training about mental illness.
 
Hardly a month goes by in which a seemingly "violent" mentally ill individual is confronted by the police and, at times, the mentally ill individual gets tasered, shot or killed and/or there is injury to the policeman.  Law enforcement needs more mental illness training in awareness, sensitivity and crisis management.
 
A great model includes the use of  specially trained Crisis Intervention Teams, (referred to as CIT) that was developed in 1989 by Major Sam Cochran of the Memphis Police Department. The Memphis Model has led to a decrease in officer involved shootings of disabled persons and a reduction in officer injuries. In fact, from 1990-2000 in Memphis there were 2 police officer involved shootings of disabled individuals and both were by non-CIT trained police officers. The Memphis CIT Model has spread across the country and, at least, 150 cities have instituted CIT programs. In Arizona 3 cities, Phoenix, Mesa & Tucson Police Departments have CIT programs and many more Police Departments across the state want CIT training for their officers. 
 
Unfortunately, a comprehensive CIT bill with a $2 million appropriation to fund the program died in  the Arizona Legislature in 2006 and in 2007 the CIT appriopriation bill is almost dead. 
 
Seventh,  publicize the Psychiatric Advance Directive or PAD.
 
 The PAD became law in Arizona in 1999 but no funds were
appropriated by the Arizona Legislature to educate consumers, family members and mental health providers about the new law. The Arizona Center for Disability Law attempted to start a PAD program but did not have the needed funds. The Psychiatric Advance Directive, as many disability laws passed by the legislature was set-up to fail - an unfunded mandate.
 
Unfortunately, PAD is the only way consumers can state what they want done or not done if they become incompetent.  For example, the consumer can indicate what they want or do not want for treatment, what hospital they want to be admitted, even what psychiatrist they prefer.  The consumer signs the form when they are competent to take effect if they become incompetent.  
 
Therefore, because of no state funding very few mental health consumers are aware of or have completed the Psychiatric Advance Directive.
 
For example, a woman who was severely depressed was strongly advised by her psychiatrist to be hospitalized.  She refused because she did not have anyone to take care of her cat. A behavioral health worker helped her to draw up a PAD that stated that her neighbor, who had agreed, would care for her cat.   She then was hospitalized.
 
The PAD is very empowering since a consumer can designate an agent to follow his/her instructions if they become incompetent.   Since PAD is in Arizona statute, thanks to Mental Health Attorney Charles Arnold, if a hospital or doctor refuses to follow their PAD, they are breaking the law. Also, the PAD will decrease the number of mentally ill persons under involuntary commitment.
 
 The only exception when the Psychiatric Advance Directive can be overridden is if the consumer is in a psychiatric emergency.
 
 Eighth,  Provide better public education about the mental illnesses.
 
 Despite recent gains, we still have a long way to go to end stigma, fear and discrimination against consumers and their family members. The public needs to understand that mental illnesses are no-fault biologically based brain disorders, which should be viewed no differently than cancer or diabetes. They need to learn about the types of mental illnesses and the new, more effective treatments that could help the thousands of Arizonans feel comfortable seeking mental health care.
 
 Ninth, Mental Health Legislative Advocacy. 
 
Just think how much state and federal government's laws affect consumers and family members!! Parity legislation, Americans With Disability Act (A.D.A.), SSI & SSDI, AZ Department of Health Services' Budget and many more.  AZ's mental health
community has made great strides in the last decade in becoming more politically active, lobbying for state and federal legislation they favor and opposing bills they are against. 
 
 A brief example -  The Civil Rights bill for employment discrimination often referred to as the "Two Little Word" bill added 2 little words, "or mental" to the Civil Rights Statute which previouly stated that only physical disabilities were covered in employment discrimination cases. The "Two Little Word" bill was killed every year from 1996 to 2001.  In 2002, with the help of then Attorney General, Janet Napolitano, the bill passed both the House and Senate and was signed into law by Governor Hull.
 
  With the assistance of the mental health advocates' email and telephone lists, the mental health and other disability communities were alerted to the developments of the Two Little Word bill as it passed through the Arizona Legislature and was transmitted to the Governor.  Arizona Legislators and Governor Hull were swamped with calls and emails which helped the "Two Little Word" bill become law.
 
We still have a long way to go. We need more mentally ill individuals to register to vote and vote on election day. Nation-wide, 20% of consumers are registered to vote.  It is much easier to vote since AZ passed a law to allow voters to use the Mail-In-Ballot.
 
Furthermore, the so called "Motor Voter Law" was passed by the federal government in 1993 which mandated that all government offices and behavioral health providers were required to register consumers to vote at intake.  The law in Arizona is rarely followed and not enforced. The more members of the mental health community become voters and legislative advocates, the more political power we will have.
 
Due to time constraints, I will briefly mention some other issues that I think would improve mental health care:
 
1) Encourage Governor Napolitano to establish a commision, as she did for the business community, to evaluate the cost of the new ASH Forensic Hospital that is "falling apart" according to an April 2007 expose by reporter Mary Reinhart of the East Valley Tribune.  Also, enact a task force to evaluate the care of incarcerated mentally ill individuals caught up in the jails and prison system.
 
2) Eliminate the 23 hour/day solitary confinement of persons with mental illness (referred to as the "BOX") except those who are trully violent felony offenders . Mentally ill individuals in the  BOX" frequently decompensate and have a significant suicide rate.
 
3) Develop a pool of mental health advocates who can go with the consumer to doctor visits as well as to their appeals and court hearings as Kathy Palmer did when she was Executive Director of the Mental Health Advocates Coalition of Arizona (MAHACA). Frequently, the consumer, especally if he/she is depressed, does not understand what is happening.
 
4) Large mental health agencies such as the Mental Health Association of Arizona and NAMI should develop Political Action Committees (PACs) to be able to compete with the other business organizations with PACs.  PACs are able to give more money to politicians' campaigns than an individual can. Unfortunately, that is the name of the game in 2007.
 
5) Finally, encourage certain consumers to have specially trained and licensed ESSAs (Emotional Support Service Animals) - [dogs, cats,  birds, ferrets and other animals].  ESSAs have been documented over and over again to help and even improve the person's mental illness.    

If these strategies were adopted, I am certain we would see dramatic improvements in Arizona's mental health care. There would be better mental health insurance coverage, fewer incarcerated individuals with mental illness, fewer teen suicides, more people with mental illness in the work force, fewer police officer involved shootings and many other improvements. 

In addition, more individuals would receive proper diagnosis and treatment. There would be new hope and optimism for persons with mental illness, for their families, for their friends, for mental health care providers and for the general public - many of whom are now touched in one way or another by mental illness.

Arizona's mental health system would become a model for the nation. Mental illness would then be regarded like any other medical illness and the stigma and discrimination against people living with mental illness would dramatically decrease and, hopefully, soon disappear.  

I will end with a quote by the great Opera singer, Dorothy Sills:
 
"You may be disappointed if you fail, but you will be doomed if you don't try."